Dog Days

Miles completed his second round of Dinutuximab last week.  Unlike his first infusion, taken in the wake of lung surgery and a 3 week hospitalization, this round he was in front of the 8-ball, with good physical reserve.  The biggest potential side effect of this antibody immunotherapy is pain, which he had none of.  He used only a fraction of the pain medicine required the first time, and he was better than lucid the whole time. 

Special thanks to nurses Laura, Emily, Grace, and Carly--they, with other nurses and clinical assistants help Miles sail smoothly. 

So, he's back in the saddle for the last week of Summer.  Between treatment rounds, Miles did his vacation thing, not dissimilar from his buds.  He saw Coldplay at Gillette, caroused with his friends, swam at the lake, tended beehives, caught a gym-full of pokemon, and spent a week baseballing in Cooperstown.

You may have heard of, or even seen, the video produced by the teacher-friend team of Tregea & Schroeder.  Suffice to say its compilation of teachers' and friends' inspiring wishes is powerful and moving. Thank you all for keeping it real, and clearing a path.

Thanks to Becca and Tam for our first tour of the hive and its yield.

Becca inspects with a hand from Miles