Securing Sector M

Miles says he feels good.  Good people around. This past weekend included cousin Tina's visit and a solid new wheelchair ramp outside 82 Old Stage Road constructed by Gavin Webb and Paul Kell. Tam and Becca worked his back and legs and brain.

The kid adapts.  Leg one is splinted: the benefit of surgery is currently outweighed by recovery time and the opportunity to try some new medicine. Leg two is burdened by tumor: limited flexion and extension and can't bear weight. So Miles has saddled up his wheelchair to get around.  Transferring positions can hurt, but he gets comfortable wherever he's sitting.  He uses pain medicine when necessary, and leads a company of ice packs, rubs, and warmers.

Enemy locations:
Left knee
Lung peripheries
One rib
T2 and T6
Shoulders

Plan:
New medical course: combination of Avastin, Sorafenib, and Low Dose Cyclophosphamide.  The first is an IV infusion, given at the outpatient Jimmy Fund Clinic once every three weeks.  The latter two are oral.
Radiation therapy: New for Miles--not a typical osteosarcoma treatment. Aimed to palliate his left knee.
Physical and Occupational Therapy: keep everything lubed and strong.

Set-up with radiation oncology is this Wednesday. Medications start Thursday.